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27th January 2009
End of Life Decision Making: Dilemmas and Directions
(Older Adults event)
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Listed below, you will find all published outputs resulting either directly from the work of the Collaborative or benefiting from the work of the Collaborative.


Journal Articles

Barclay S, Arthur A (2008) Place of death – how much does it matter? The priority is to improve end of life care in all settings British Journal of General Practice, 58(): 229-231.

Bingley AF, Thomas C, Brown J, Payne SA (2008) Developing narrative research in supportive and palliative care: the focus on illness narratives Palliative Medicine, 22(5): 653-658.

Brown JB, Addington-Hall J (2008) How people with motor neurone disease talk about living with their illness: a narrative study Journal of Advanced Nursing, 62(2): 200-208.

Brown JB, Bingley AF, Payne SA (2008) The need for narrative research. The Cancer Experiences Collaborative (CECo) End of Life Care, 2(3): 62-64.

Cohen J, Bilsen J, Miccinesi G, Lofmark R, Addington-Hall J, Kaasa S, Norup M, Van der Wal G, Deliens L (2008) Using death certificate data to study place of death in 9 European countries: opportunities and weaknesses BMC Public Health, 7(): 283.

Lloyd-Williams M, Hughes JG (2008) The management of anxiety in advanced disease Progress in Palliative Care, 16(1): 47-50.

Wilson E, Elkan R, Seymour J, Almack K (2008) A UK literature review of progressive long term neurological conditions British Journal of Community Nursing, 13(5): 206-212.

Almack K (2007) Palliative care and end of life care for the non-heterosexual community End of Life Care for Nurses, 1(2): 27-32.

Brown JB, Addington-Hall J (2007) Identifying how people with MND/ALS talk about living through their illness: a narrative study to enhance self-management Amyotrophic Lateral Sclerosis, 8(1): 49.

Foster C, Brown J, Killen M, Brearley S (2007) The NCRI Cancer Experiences Collaborative: defining self-management European Journal of Oncology Nursing, 11(4): 295-297.

Gott M, Barnes S, Payne S, Parker C, Seamark D, Gariballa S, Small N (2007) Patient views of social services provision for older people with advanced heart failure Health and Social Care in the Community, 15(4): 333-342.

Gott M, Barnes S, Payne S, Parker C, Seamark D, Gariballa S, Small N (2007) Dying trajectories in heart failure Palliative Medicine, 21(): 95-99.

Lloyd-Williams M, Kennedy V, Sixsmith A, Sixsmith J (2007) The end of life: a qualitative study of the perceptions of people over the age of 80 on issues surrounding death and dying Journal of Pain and Symptom Management, 24(1): 60-66.

Payne S (2007) Public health and palliative care (Editorial) Progress in Palliative Care, 15(3): 101-102.

Payne S, Addington-Hall J, Richardson A, Sharpe M (2007) Supportive and palliative care research collaboratives in the United Kingdom: an unnatural experiment? Palliative Medicine, 21(8): 134-144.

Payne S, Field D, Kerr C, Hawker S, Rolls L (2007) Evaluating case study methods research for use in end of life care practice: reflections on three studies Journal of Advanced Nursing, 58(3): 236-245.

Payne S, Hudson P (2007) Collaboration on research into family carers moves a step forward European Journal of Palliative Care, 14(5): 218.

Sargeant A, Payne S, Gott M, Small N, Oliviere D (2007) User involvement in palliative care: motivational factors for service users and professionals Progress in Palliative Care, 15(3): 126-132.

Sargeant A, Payne S, Gott M, Small N, Oliviere D (2007) User involvement in palliative care: Motivational factors for service users and professionals Progress in Palliative Care, 15(3): 126-132.

Seymour J (2007) Needs and preferences of patients with diseases other than cancer: the UK experience Progress in Palliative Care, 15(3): 108-112.

Seymour JE (2007) Windows on suffering: sociological perspectives on end of life care 2, 2(): .

Seymour JE, Payne S, Chapman A, Holloway A (2007) Expectations of end of life care among white and Chinese older people in the UK Sociology of Health and Illness, (monograph), 29(6): .

Stevens T, Payne S, Burton C, Addington-Hall J, Jones A (2007) Palliative care in stroke: a critical review of the literature Palliative Medicine, 21(4): 323-331.

Wilson E, Seymour J (2007) Exploring the palliative and end of life care needs of those affected by progressive long-term neurological conditions Journal of Care Services Management, 2(1): 92-102.

Bailey C, Wilson R, Addington-Hall J, Payne S, Clark D, Lloyd-Williams M, Molassiotis A, Seymour J (2006) The Cancer Experiences Research Collaborative: building research capacity in supportive and palliative care Progress in Palliative Care, 14(6): 265-270.

Hagen NA, Addington-Hall JM, Sharpe M, Richardson A, Cleeland CS (2006) Proceedings of the Birmingham International Workshop on supportive, palliative and end of life care research Cancer, 107(): 874-881.


Bulletins

Payne S (2007) The research page: Supportive and Palliative Care – ‘Cancer Experiences’ Hospice Bulletin, 5(3): 3.


Newsletters

Bailey C (2007) The Cancer Experiences Research Collaborative (CECo): enhancing quality and increasing capacity in supportive and palliative care research CRUK PBSC Newsletter, June.

Bailey C (2007) Palliative care research takes a step forward MHLS Graduate School Newsletter, July.


Book Chapters

Froggatt KA, Downs M, Small N (2008) Palliative Care for People with Dementia: Principles, Practice and Implications In: Woods R and Clare L (Eds) Handbook of the Clinical Psychology of Ageing (2nd Edition). Wiley: Chichester.

Payne S (2007) Resilient carers In: Monroe B and Oliviere D (Eds). Resilience in Palliative Care – Achievement in Adversity. Oxford University Press: Oxford.

Payne S (2007) Grounded Theory In: Lyons E and Coyle A (Eds) Analysing Qualitative Data in Psychology. Sage: London.


Books

Bingley AF, Clark D (2008) Palliative care developments in the region represented by the Middle East Cancer Consortium: a review and comparative analysis. National Cancer Institute: Bethesda, MD.

Butterworth C, Froggatt K, Vaughan S (2008) Ascertaining Wishes: A Good Practice Guide. Counsel and Care: London.

O’Shea E, Murphy K, Larkin P, Payne S, Froggatt K, Casey D, Léime A, Keys M (2008) End-of-Life Care for Older People in Acute and Long-Stay Settings in Ireland. Irish Hospice Foundation and National Council on Ageing and Older People: Dublin.

Addington-Hall J, Higginson I, Bruera E, Payne S (2007) Research Methods in Palliative Care. Oxford University Press: Oxford.

Grinyer A (2007) Young People Living with Cancer: Implications for Policy and Practice. Open University Press: Maidenhead.

Henry C, Seymour J (2007) Advance care planning: a guide for health and social care professionals. NHS End of Life Care Programme: Leicester.

Payne S, Froggatt KA (2007) Bereavement and Loss: A Guide for Hospital Staff. Help the Aged: London.

Small N, Froggatt KA, Downs M (2007) Living and Dying with Dementia: Dialogues about Palliative Care. Oxford University Press: Oxford.

Walker J, Payne S, Smith P, Jarrett N (2007) Psychology for Nurses and the Caring Professions (3rd Edition). Open University Press: Maidenhead.


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